Thursday 11 October 2018

Blood, sweat and fears... Part III

"Fear is a reaction. Courage is a decision" Sir Winston Churchill

When rehab hasn't really progressed things and the NHS seem to want to send you down the slow route whilst noting that you are a long way off having a fully functioning shoulder, there is really only one route to explore. When you are talking shoulder injuries it seems pretty unanimous that there is only one person to consult - Professor Len Funk aka The Shoulder Doctor. An MRI scan confirmed his suspicions - that my shoulder was not going to improve on its own! Given how fast the private healthcare system operates (no pun intended), no sooner had we agreed for 'The Prof' as I affectionately call him, to do his thing then it was operation fix Fiona day.

Looking a little peeky after a couple of hours in theatre
I'm not the calmest patient at the best of times and given the experience of being sedated with Ketamine back in April (see blog post Blood, Sweat & Fears: Part I) was still all too fresh in my mind, I walked down to the anaesthetic room with trepidation. Going for surgery always creates mixed feelings - you know that (all being well) you are going to come out the other side with a far greater chance of improvement having been 'made better', however you know there is a whole lot of discomfort to come in the meantime. Dr. Hundle, the anaesthetist, helped to settle my nerves; he went off to get a surgical hat to cover my long locks and then proceeded to put it on over my eyes (you had to be there to find it amusing!). Anyway, no sooner had he told me that he needed to set up the cannula in my hand and got me on the subject of breakfast cereal (he happened across one of my pet subjects!!) then I was coming around in the recovery area.

Hospital Hair: the result of plaits for a week! I'd highly recommend it when you can't reach your head .
It was a far more stressful experience for Paul than it was for me. Whilst I was in theatre there was a thunder storm rolling around outside, disrupting the power. I was gone for 1 hour, then 2... Obviously there was no power disruption in the hospital but when you are anxiously waiting for someone to return it's easy to over-think the minor details.

I'd taken the advice of The Prof and Dr. Hundle and had a brachial plexus nerve block, so when I came around I couldn't feel anything from my shoulder to my fingertips on my left arm. It sounded slightly scary in that there was a small chance of it going wrong and my arm being paralysed. However Dr. Hundle assured me that he does in excess of 800 of these every year and would not consider having this type of surgery done himself without one. That was enough to convince me!

I'd never realised how heavy a 'dead' arm was until now but I certainly wasn't complaining as the main benefit was 12-14 hours of no feeling and therefore no pain! Having been in constant pain since that fateful day on April 22nd this was actually a fantastic experience - it was a shame I was so feeling so dopey after the general anaesthetic, or I could have capitalised.

Important to start moving gradually within 24 hours
Prof Len came by to see us later in the evening to say that he hadn't found anything unexpectedly 'nasty' when he opened up my shoulder, which is always a relief. He and his team had done their bit so it was down to me to follow his instructions for the next 3 weeks... The first few days were definitely the worst, I've never tolerated general anaesthetic particularly well so I knew to expect being very sick. I had forgotten just quite how sore the tubes make your throat though - this all made taking a veritable pharmacy of tablets more challenging. Both Prof Funk and his Pain Specialist Assistant kept tabs on me over the first few days which was nice.

Step by step rehab on Shoulder Doc website
The Shoulder Doc website is an excellent resource for both shoulder patients and physios alike. I was to work my way through level 1 exercises over the coming weeks. There is a whole host of articles, shoulder animations and other interesting shoulder related stuff - it's a hub for medical professionals as well as a comprehensive patient resource. If you know someone who is struggling with a shoulder problem then it is definitely worth a browse.

There are a few basic but really useful things that I learnt that might be handy to share:

1. Managing Pain:
The art of pain management lies in being one step ahead. Despite being nerve blocked for 12-14 hours and therefore having no pain during this time, the anaesthetist explained that it was important to accept pain relief so I had plenty on board. It is too late once you start to feel pain as you will have already entered into that vicious circle of playing catch up. I had a variety of painkillers, some of which were 'staple' meds and some were to help manage that 'breakthrough pain' when some of the painkillers are starting to wear off but it's not quite time to take the next dose... We all respond differently to different groups of painkillers but prior to surgery I was struggling to tolerate Tramadol so the anaesthetist switched me onto oral morphine. I was dreading taking it as I'd already decided that it was likely to taste vile - as it happened, it was more like the cough medicine Benylyn so not unpleasant at all. A potential result there; pain killers that taste ok and actually do what it says on the tin (or bottle in this case)... as long as it is spaced far enough away from the other opiates, or combined they also make you feel sick. Who knew taking analgesics was such an art form, definitely not me until recently.

It was also instilled in me that pain management is an equally important part of rehab and recovery as Physio, rest and follow up appointments. After all, if I'm in pain I'm unlikely to be able to tolerate the Physio exercises and risk regressing or at least not getting the most out of the surgery. Clearly my hitherto attitude of try and get by on as few pain meds as possible was not going to cut the mustard!

2. Managing Medication:
When you have a host of different medications to take, e.g. multiple painkillers, anti-inflammatories, anti-sickness etc they inevitably need to be taken at different times of the day, some without food and some after. Whilst initially you might think it sounds straight forward you soon realise that this is actually far from true. However, making yourself a simple Meds log makes it a whole lot simpler to remember. It needn't be complicated; just the date, time and what you've taken should suffice. It will alleviate that 'was it 8am or 9am when I took those painkillers', 'can I take the morphine yet'...? Even if you usually have a good memory, the after effects of a general anaesthetic, lack of sleep, and having different medications with different requirements that you're likely not used to taking all work their magic to confuse you!

3. More is not Better:
Whilst this also applies to meds, I am actually referring to rehab exercises! When your exercise sheet says do 8-12 of these x 3 a day, the athlete mindset kicks in and you think well, surely if I do 12-14 x 4 day I'll get better quicker... WRONG! Pushing myself to the limit and trying to squeeze in as many little exercises as I could muster, I thought that I must be helping myself. In fact I was doing the exact opposite - creating more inflammation in the area and slowing down the healing process, not to mention increasing the pain levels and then having to take increasing amounts of morphine to try and settle it down.

A useful guide - if you think of a visual analogue scale (VAS) where pain is 1 - 10 were 10 is excruciating, you should not be jumping up by more than 2 points when you are doing your exercises. So, if you were a 6/10 before you started, you might find yourself at 7 or 8/10 during your exercises but within a few minutes of finishing you should be back at that 6/10 again.

Don't forget, we are all different and every mechanism of injury sets us off on a different path or rehab trajectory, so just as we wouldn't share prescriptions for pain medication don't be tempted to share exercises that aren't prescribed for you either.

Good luck to anyone else on a rehab journey, don't forget to use the support around you, be honest with your Physio if things aren't going as you'd hoped but be honest with yourself too! x

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